Update on J

So, the confab of cardiologists looked at J’s file and put us back on the “come back in 6 month” track, which is a good thing.  Essentially, one of three things has to happen before we’ll move on to next steps:

  1. He starts showing symptoms, i.e. shortness of breath, bluish lips/fingernails, etc.
  2. He has clear right atrium enlargement
  3. His tricuspid regurgitation gets worse

If we see any of these things happening, then we’ll start with more serious planning.  His cardiologist also told us he was somewhat of a “square peg in a round hole” in that not many kids have exactly what he has.  There are a higher percentage of children with Tetralogy of Fallot, which, as you can probably deduce from the name, is a grouping of three defects.  J only has two of them, which is unusual.  That’s one reason why the doctors are a being a little cautions with his treatment.

So, at least for the time being, “Come back in six months” is still my favorite phrase.

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2 Comments on “Update on J”

  1. miss V. Says:

    Thank God..Good Doctors also. What a blessing !!!

  2. quotation marks Says:

    I don’t understand all of it, but I do know what 6 MONTHS means. Thanks for the official update.

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